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(Scroll down to hear previous shows)
With your Hosts...
Taking Your Treatment Home
Have you considered all your dialysis options? Home dialysis is a good option for many people and can allow more flexibility in your
schedule and can provide better outcomes. Lori talks to Rich Berkowitz, founder of NxStage Users (soon to be called Home Dialyzers
United), and they share stories about their experiences with home hemo and peritoneal dialysis. Listen and learn about the benefits
of taking more control or your treatment.
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Posted February 1, 2012
Past Shows on KidneyTalk!
Starting a Support Group
Support is crucial when you have kidney disease and often RSN is asked how to create and maintain a successful support group. Lori Majopian called RSN and asked for guidance on how to start a support group in her area. We decided to record the call. In this interview Lori Hartwell provides ideas on what is involved, how to get started, tips for success and answers the callers questions. Peer to peer support is very important,
and considering starting a support group in your area can help provide knowledge, experience and most importantly hope.
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Posted January 19, 2012
An Iron Will!
Shad Ireland has accomplished what only a select few people can say - he competes in Ironman Triathlons. Having been on dialysis
for decades, he shares his journey of despair to becoming a transformed athlete. His wisdom, drive and desire to help others with
chronic kidney disease are evident with the many tools he has developed. You won't be able to stay in your seat for this
interview as it will make you want to get up, move and take action.
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Posted January 4, 2012
Protect Your Wallet: How to Prevent, Identify and Dispute Medical Billing Errors
Do you know the most common billing errors? Can you really get sent to collections for not paying? How do you dispute a medical
bill? Lisa Zamosky, writer for the Los Angeles Times consumer health column, Health 411, as well as WebMD's Health Insurance
Navigator blog, shares tips on how to deal with medical billing errors. They happen more often than you might think, but they are
sometimes preventable. Listen to Lisa and Lori's conversation and learn ways to protect yourself and your wallet by knowing more
about your medical bills and how to fight back.
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Posted December 13, 2011
Speak Up: How to Engage Your Dialysis Team
Effective communication is the key to a successful partnership and it is important that people who are on dialysis are involved in
their care to receive the best outcome. Debra J. Hain, PhD, APRN, GNP-BC explains how patients can engage their dialysis team to
become informed consumers and how establishing a partnership can benefit both you and your dialysis team.
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Posted November 29, 2011
Keeping Busy is Good Medicine
Deborah Ramsey is definitely a glass half full kind of gal and you won't find much grass growing under her feet. She had a kidney
transplant 24 years ago and has had a few challenges to overcome. Despite her many obstacles she continues to be a positive force in
her community. You will feel inspired after listening to her amazing outlook on life.
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Posted November 15, 2011
No Kidney Left Behind
People who have received a kidney transplant who have Medicare will lose their Medicare benefits 36 months post-transplant, if they
are not disabled or are not over the age of 65. If a transplant recipient does not have health insurance and/or access to the medications that
keep the organ viable, it leaves them at risk of losing their transplant due to rejection. Congressman Michael C. Burgess, M.D., from
Texas, introduced the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2011 (H.R. 2969) to help
transplant recipients have continued access to the life-saving medication. He explains why this bill is good policy and a necessity, to
save Medicare money and to save patient lives.
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Posted October 26, 2011
Kidney Transplantation: Understanding the Match
Over the years many advancements have been made in how the matching of donor kidneys to recipients is determined. Dr. Rafael
Villicana is Associate Director of Kidney Transplantation at Cedars Sinai in Los Angeles, California and explains blood type
compatibility, antigen match and how antibodies tell if the kidney is suited for the recipient. Learn about blood type
incompatibility, kidney swaps and what transplant doctors are looking for when they perform a cross match.
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Posted October 5, 2011
Too Many Antibodies: What To Do?
If you have had a transplant, blood transfusion or have given birth, you might have antibodies that prevent you from getting transplanted. Dr. Stanley Jordan of Cedar Sinai Medical Center describes this breakthrough treatment called
"desensitization" which allows people with high antibodies to receive a successful kidney transplant. Listen to Lori's story about how she underwent this treatment protocol which made it possible for her to receive her 4th kidney transplant.
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Posted September 20, 2011
The Quest For a Cure
Ken Kleinberg, high powered entertainment attorney, didn't know anything about kidney disease until his doctor told him his kidneys
were failing, and he would need dialysis or a transplant to survive. Ken turned his misfortune into an opportunity to help others,
by starting the University Kidney Research Organization (UKRO), to help find a cure for this devastating disease. USC, Natalie Cole
and Deana Carter are on board to help accomplish this mission. Here is his remarkable story of determination and hope.
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Posted September 6, 2011
A Miracle in Every Breath
Twin sisters Ana and Isa, both born with cystic fibrosis (CF), have had three double-lung transplants between them and
are the picture of resilience and fortitude. Academy Award nominated producer Marc Smolowitz, who directed the newly
released documentary film "THE POWER OF TWO", discusses the highlights of the film with Lori, about Ana and
Isa's quest to advocate and educate their peers, especially in Japan where CF is rare, and organ transplantation is a
cultural taboo. This film will be screened in "DocuWeeks 2011", which qualifies documentary films for consideration
for the Academy Awards.
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Posted August 23, 2011
Ticket to Work: Support for People Who Have a Disability and Want to Work
Going back to work and finding a job can be difficult when you have a disability. Dan O'Brien, Deputy Associate Commissioner
for Social Security’s Office of Employment Support Programs explains to Lori what the Ticket to Work program is, who is eligible
to apply and how to participate. In this interview you will learn how it can help you and what you need to do to get started.
Play Now
Posted August 9, 2011
Confessions of Mary Wu
Mary Wu is no stranger to overcoming adversity. As a young child she had to overcome kidney disease, and has since grown into a lovely
young lady, wise beyond her years. Lori and Mary talk with humor and grace about the transition from pediatrics to adulthood. By the
end of the show, they find that they have more in common than they knew.
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Posted July 26, 2011
Islet Cell after Kidney Transplant
Renae Jacob was diagnosed with type-one diabetes and was told that her kidneys would fail someday and she would need a kidney
transplant. Luckily, she was able to receive a kidney from her girlfriend. Diabetes impacts the pancreas and Ranae learned she
was a candidate for a clinical trial of islet cell transplant which, if proved successful, would end the need to take insulin
and would help her pancreas to start working again. Hear her remarkable story of courage and hope.
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Posted July 13, 2011
Never Forget a Pill Again!
Remembering what meds to take, at the right time, and making sure you have adequate supply can sometimes be daunting. Donna G. Brooten
describes an online medicine management system, MyMedSchedule.com, that will help you stay on track and provides personalized print outs (you can receive
text messages too) of your medication regimen. Be on top of your medicine management and dazzle the docs.
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Posted June 28, 2011
No Needle Sticks: Use Your Belly!
It is important to know your dialysis treatment options and peritoneal is a great choice for people who want to have more control,
a more liberal diet and freedom with their dialysis schedule. Lori, who was on this therapy for nine years, interviews Stephanie Curd,
RN, and Director of Home Therapies with Fresenius Medical Care. They both know the ins and outs of peritoneal dialysis so if you
want to know about this option from two insiders listen to this show.
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Posted June 14, 2011
Finding a Kidney on Craigslist
Larry Green is an accomplished artist and spent many of his dialysis days drawing his access arm capturing the different needle
angles, tape and changes he saw occurring to help pass the time. He was becoming restless with the time dialysis took. One day
he had an epiphany and realized that if he wanted to get off of dialysis and get transplanted, he would have to take control.
Here is the amazing story of how he found his kidney on Craigslist from an altruistic donor.
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Posted May 24, 2011
Nurturing Relationships and Taking Control of Your Care
David Rosenbloom, author of Becoming Me, shares the emotional evolution he experienced while dealing with the many
challenges of kidney failure. He shares insight into how his wife was his advocate and champion, but became overwhelmed after
two transplant opportunities had fallen through, which caused her to have some health issues. This incident caused David to
make changes in his life, attitude and treatment plan. David and Lori discuss how he made this transition.
Play Now
Posted May 9, 2011
How To Be Sick
There's a guide for this? Yes. Toni Bernhard, former law professor, authored "How To Be Sick" after learning she may never
recover from an undiagnosed illness. The flu-like symptoms that keep her in bed most of the time, also led her to find ways to live
well with a chronic illness. Listen to her story and learn how Buddhist practices can help overcome the anger, jealousy and other
emotions that people with chronic illnesses face.
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Posted February 22nd, 2011
Life is Just Not That Complicated
Jim Dineen is no stranger to adversity. His quick wit and outlook on life is contagious. In this interview, Jim explains some of the
obstacles he has undergone while living with kidney disease and provides tips and strategies from his new book that was recently published.
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Posted January 25th, 2011
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